Total Community Care - Specialists in spinal & neurological care

Providing bespoke care nationwide for clients with spinal injuries and neurological conditions

11 Mar

Huntington’s Disease

TCC supports individuals with Huntington’s Disease and are developing relationships with the Huntington’s Disease Association (HAD) https://www.hda.org.uk/huntingtons-disease).

An Overview of Huntington’s Disease

It is estimated that some 8,000 individuals in the UK display the symptoms of the disease but a further 32,000 carry the faulty gene.

Huntington’s disease is an illness caused by a faulty gene in your DNA (the biological ‘instructions’ you inherit which tell your cells what to do). If you have Huntington’s, it affects the body’s nervous system – the network of nerve tissues in the brain and spinal cord that co-ordinate your body’s activities.

Huntington’s can cause changes with movement, learning, thinking and emotions. Once symptoms begin, the disease gradually progresses, so living with it means having to adapt to change, taking one day at a time.

Some facts about Huntington’s:

  • Huntington’s is not something you can catch; it is inherited. Every child conceived naturally to a parent who carries the Huntington’s gene has a 50% chance of inheriting it.
  • A genetic test can find out if you have the faulty gene.
  • You can live with the faulty gene for years without symptoms, but if you do have it, at some stage you will develop symptoms. Doctors cannot tell you when this will be.
  • Huntington’s disease affects men and women. It usually develops between the ages of 30 and 50, but can start at any age. If you develop symptoms before the age of 20, this is known as Juvenile Huntington’s disease.

Living With Huntington’s Disease

Although there is, as yet, no cure, you can learn to manage symptoms more effectively to improve quality of life.

TCC believe that personalised care support packages can enable individuals to maintain their independence at home.

Reg Perrins—Commercial Director