Total Community Care - Specialists in spinal & neurological care

Providing bespoke care nationwide for clients with spinal injuries and neurological conditions

28 May

Motor Neurone Disease

Motor Neurone Disease is a chronic, degenerative condition which affects the nerve cells that control movement. What is Motor Neurone Disease Motor Neurones are the nerve cells in the brain and spinal cord that are responsible for movement control. In Motor Neurone Disease, these nerve cells become damaged, and this damage is irreversible and worsens […]

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28 Apr

Acquired Brain Injury

Brain injuries come in many forms. Some are present from birth: these can be congenital, meaning a person is born with them; inherited, meaning they are passed on from one or both parents; or can happen from complications in pregnancy, or during or around the time of birth. Acquired brain injury (ABI) is a brain […]

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26 Mar

Spinal Muscular Atrophy

Spinal Muscular Atrophy (SMA) is a degenerative neuromuscular disorder which affects around 1 to 2 out of every 100 000[i] people worldwide. It affects the nerves which send messages between the brain and the muscles, causing progressive muscle weakness. SMA does not affect a person’s brain function or their ability to learn and understand, but […]

Categories: Neurological Injuries

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25 Feb

Duchenne Muscular Dystrophy

One condition that can mean a person develops complex care needs is Duchenne Muscular Dystrophy (DMD). What is Duchenne Muscular Dystrophy? Muscular dystrophy is an umbrella term that encompasses a range of conditions, all of which have certain common features. Duchenne Muscular Dystrophy, or DMD is the most common form of muscular dystrophy. It mainly […]

Categories: Neurological Injuries

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22 Jan

Can Spinal Cord Injuries Affect the Brain?

Spinal cord injuries (SCI) classically affect function – movement, control and sensation – of all parts of the body which use the nerves at and below the level of injury. This means that, although the brain’s communication with some parts of the body may be permanently and partially or completely obstructed, there is not necessarily […]

Categories: Neurological Injuries, Spinal Injuries

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11 Jan

An Association for All: TCC becomes the Spinal Injuries Association first Trusted Care Partner

Total Community Care (TCC) is delighted to announce that it has joined the Spinal Injuries Association (SIA) network of partners, as their first Trusted Care Partner. SIA is an organisation that we know very well, having worked together for many years. This new partnership is another vital step towards the achievement of SIA’s aim to […]

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24 Dec

Huntington’s Disease

Huntington’s Disease, sometimes called Huntington’s Chorea or just Huntington’s, is a genetic disorder which affects the brain. The name ‘Huntington’s Chorea’ describes the kind of involuntary fidgety movements people with Huntington’s disease experience. Huntington’s disease is a neurodegenerative disease, which means that it causes gradual degradation to the nerve processes of the brain. Huntington’s causes […]

Categories: Neurological Injuries

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02 Dec

Ironing out the cancer nursing challenges during Covid-19 webinar

Yesterday (December 1st) I attended a webinar about the cancer nursing challenges during Covid -19. It was very informative.  It was interesting to hear about staff too scared to come to work, even experienced staff, due to the Covid-19. And to think, the Royal Marsden hospital did not have enough PPE supplies.  The ever-changing rules […]

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20 Nov

How Spinal Cord Injuries Affect Your Health

The scope of impact a spinal cord injury (SCI) has on the body can be incredibly widespread and varied, affecting almost all of the functions and processes of the body below the level of the injury. The physical effects and the events leading to the SCI can also have a significant psychosocial impact on both […]

Categories: Spinal Injuries

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04 Nov

What is Autonomic Dysreflexia?

Autonomic dysreflexia[i] (AD) is also known as autonomic hyperreflexia. It describes a situation where the body exhibits an exaggerated reflex response to a problem or stimulus. A person with a high spinal cord injury is likely to be unable to consciously sense and respond to a damaging or irritating stimulus. The body’s unconscious systems – […]

Categories: Spinal Injuries

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30 Sep

What Is Complex Care?

The term ‘complex care’ encompasses a range of needs requiring ongoing essential specialist support. In the past, people with complex needs were confined to formal care settings and their care was highly medicalised. People with complex needs have one or more conditions which mean they are dependent on specially trained carers.  ‘Complex’ means they may […]

Categories: Complex Care

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09 Sep

Dedicated Care Manager for each package of care

Do you manage a care package that is taking up a huge amount of your time?  Total Community Care can help you with this.  Included in our costings is a dedicated Care Manager for each individual care package. This means you have one simple and easy point of contact who can help deal with any […]

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09 Sep

How the care package is sustained in the event of carer sickness

Our care teams and rotas are set up to be sustainable and self-sufficient. Contingency planning is in place from the outset, with sufficient staff being recruited to ensure the care provision is robust and sustainable regardless of circumstances such as sickness and annual leave. The aim of this individualised approach with robust sickness policy and […]

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09 Sep

Specialist training from a dedicated Clinical Nurse

Total Community Care’s (TCC) training is delivered by a clinical nurse with appropriate experience in the client’s diagnosis and health care needs. All support worker staff complete key competency training specifically related to meeting the client’s needs. This is underpinned by clinical supervision and observation of care delivery. Specialist trainers are also employed by TCC. […]

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09 Sep

Specialist neurological care and support in times of a pandemic

In less than six months the world has changed in so many ways with the arrival of Covid-19. I wonder whether in future we will talk of life pre and post virus times? One thing that is absolutely certain is care and support have had to change to reflect these times. Many clients went into […]

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02 Sep

Managing Complex Care Needs at Home

Complex care can encompass all or any of a range of support services, including physical, social, and emotional support with normal daily activities. These kinds of medical and social needs can arise due to traumatic injury, degenerative illness, or congenital conditions – some people’s care needs can also fluctuate with time and aren’t always predictable. […]

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30 Jul

Spinal Injury without Radiographic Abnormalities

Sometimes, traditional imaging with x-ray or CT scan does not find a clear physical cause for the spinal cord injury symptoms the patient is experiencing – no injuries to the vertebrae or other obvious physical damage around the spine. This is known as ‘spinal injury without radiographic abnormalities’, or ‘SCIWORA’. Sometimes the terms ‘neuroimaging’ or […]

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24 Jun

Living with a Spinal Cord Injury: Common Questions

The effects of a spinal cord injury (SCI) can last a lifetime and vary hugely from one person to another and between injuries. The impact an SCI has on a person’s life and health depends on the extent of the damage and the area of the spine affected. An SCI can have a spectrum of […]

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03 Jun

What are the differences between complete and incomplete spinal cord injuries?

No two spinal cord injuries are exactly alike. The amount of feeling and function a person retains after a spinal cord injury (SCI) depends on the nature and extent of the injury. The spinal cord is a bundle of nerves extending from the brain down the backbone. Pairs of nerves branch off from the spinal […]

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15 May

Spinal Cord Injury Awareness Day

I was an extremely busy teacher for many years, and had an active social life, including going to the gym, dancing, seeing friends, and completely taking my life for granted. In the blink of an eye my life changed forever in March 2008! My husband and I had been travelling back from Cornwall , after […]

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24 Apr

Levels of Spinal Cord Injury

The physical impact of a spinal cord injury depends largely on the area of the spine where the damage occurs. As the spinal cord progresses from the brain down the backbone, pairs of nerves extend between each vertebra to different areas of the body. This means that the nerve signals at and below the area […]

Categories: Spinal Injuries

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26 Mar

What is Anterior Cord Syndrome?

Anterior cord syndrome is a condition affecting the spinal cord. ‘Anterior’ refers to the part of the cord affected; in this case, the aspect of the cord facing the front of the body. It is an ischaemic condition, meaning it is caused by lack of blood flow ‘feeding’ oxygen and nutrients to the spinal cord, […]

Categories: Spinal Injuries

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10 Mar

What are the Specialist Measures for Providing Home Care for our Ventilator Clients?

Going home from hospital with new care needs can be daunting for everyone involved. The intervention that we hear the most questions about is one of the most complex: home ventilation. This is a naturally emotive issue as breathing difficulties can be some of the most frightening, both to the person having the problem and […]

Categories: Ventilator Care

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28 Feb

Corona Virus – COVID-19

There is quite rightly a national and indeed global concern relating to the potential impact of Corona Virus.  The situation is fast changing but I thought it might be useful to make the governmental advice as of 27th February. Inevitably there has been a great deal of misinformation. The most frequent question I have received […]

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17 Feb

Long Term Care for Clients with Brain Injury

The key to getting home and staying home after a brain injury is effective rehabilitation, good planning, and a bespoke team of carers and professionals to meet your ongoing care needs. The brain is incredibly complex, and the results of any injury to the brain can range from mild changes to catastrophic, life-changing events. Brain […]

Categories: Neurological Injuries

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02 Jan

Sarah’s New Year Blog

Happy New Year everybody! So I am getting married this May (sounds scary saying that)! So I thought I would write a bit about my experience with relationships and how I felt about relationships, being paralysed since I was 18 months old, my struggles, and how I feel now. Growing up paralysed from the neck […]

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31 Dec

Funding for Spinal Injury and Neurological Care and Support

What are the different types of funding available for spinal injury and neurological care, and what’s the best way to get funding? Spinal injury, neurological rehab and ongoing care and support are extremely specialist, complex and multi-faceted. No two people are the same, and everyone has their own priorities and their own ways of living […]

Categories: Neurological Injuries

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09 Dec

What is a C6 spinal cord injury?

Spinal cord injuries describe a wide variety of damage to the spinal column and cord. They have profoundly different effects depending on where in the spine the damage has occurred, and whether the nerve impulses are completely or only partially damaged at the point of the injury. As there is such variety in problems caused […]

Categories: Spinal Injuries

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22 Nov

MASCIP 2019

On the 28th November, I and fellow colleagues will be attending MASCIP 2019 in Loughborough. MASCIP stands for Multidisciplinary Association for Spinal Cord Injury Professionals, this will be my first year attending and I am very much looking forward to it. The Associations prime objective is to provide a national professional forum to promote standards […]

Categories: Spinal Injuries

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18 Nov

Moving and Handling Update

Maureen Harriott, Clinical Nurse Specialist, and I attended a moving and handling update last week. The day gave us opportunities to meet other attendees from differing work areas, gain an update/review of legislation, and share experiences of challenges for our clients, patients or service users. In addition, relooking at cost saving in relation to equipment […]

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10 Nov

Back up Ball 2019

On Saturday 9th November Reg Perrins, Commercial Director, Natasha Hole, Care Manager and I attended the Back Up Trust Ball fundraising event. The Ball is an opportunity for everyone to recognise the great work achieved to support people affected by spinal cord injury this year. We shared our table with representatives from both William Martin […]

Categories: Charity Work

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01 Nov

Happy Birthday TCC!

Today marks our 13th Birthday! 🎉🎂 We would like to say a big thank you to all who have contributed to TCC over the past 13 years, and we hope you will continue to be part of the TCC story. Happy Birthday Everyone! Chris, Reg and Debbie – TCC Directors

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15 Oct

Hello from Sarah!

Hi Everyone My name is Sarah Yeo and I am 34 years old, currently living in Bodmin, Cornwall with my fiance Rich, our two dogs Marley and Darcey and cat Sunflower. When I was 18 months old I had an accident which left me paralysed from the neck down and reliant on a ventilator 24 […]

Categories: Community

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25 Jul

Tracheostomy Course

Two day Tracheostomy Course at Northwick Park Hospital attended by Eileen Lynn and Claudine Needham, Trainers at TCC. We travelled to Northwick Park Hospital to take part in the MDT Tracheostomy study days, the first day covering the fundamentals of Tracheostomy care, and the second day Advanced Skills for Tracheostomy care. The course directors were […]

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24 Jul

A day at the seaside with Colin!

During a recent visit to see Colin I accompanied him, his wife (Margy) and team members Chrissy and Katie to Redcar. It was a beautiful day and a walk along the sea front was just what the doctor ordered. Colin chatted to passers-by and loved seeing the dogs on the beach, so much so that […]

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24 Jul

Outstanding Care Forum -10th July 2019 – Callywith College

On Wednesday 10th July myself and Julie Tailor (Operations Manager for the South) attended the Outstanding Care Forum event at Callywith College. Despite a few navigational issues on the way, we arrived in plenty of time to enjoy a coffee and biscuit in the café area, before being asked to go through to the lecture […]

Categories: TCC News

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