Total Community Care - Specialists in spinal & neurological care

Providing bespoke care nationwide for clients with spinal injuries and neurological conditions

20 Nov

How Spinal Cord Injuries Affect Your Health

The scope of impact a spinal cord injury (SCI) has on the body can be incredibly widespread and varied, affecting almost all of the functions and processes of the body below the level of the injury. The physical effects and the events leading to the SCI can also have a significant psychosocial impact on both […]

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04 Nov

What is Autonomic Dysreflexia?

Autonomic dysreflexia[i] (AD) is also known as autonomic hyperreflexia. It describes a situation where the body exhibits an exaggerated reflex response to a problem or stimulus. A person with a high spinal cord injury is likely to be unable to consciously sense and respond to a damaging or irritating stimulus. The body’s unconscious systems – […]

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30 Sep

What Is Complex Care?

The term ‘complex care’ encompasses a range of needs requiring ongoing essential specialist support. In the past, people with complex needs were confined to formal care settings and their care was highly medicalised. People with complex needs have one or more conditions which mean they are dependent on specially trained carers.  ‘Complex’ means they may […]

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09 Sep

Dedicated Care Manager for each package of care

Do you manage a care package that is taking up a huge amount of your time?  Total Community Care can help you with this.  Included in our costings is a dedicated Care Manager for each individual care package. This means you have one simple and easy point of contact who can help deal with any […]

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09 Sep

How the care package is sustained in the event of carer sickness

Our care teams and rotas are set up to be sustainable and self-sufficient. Contingency planning is in place from the outset, with sufficient staff being recruited to ensure the care provision is robust and sustainable regardless of circumstances such as sickness and annual leave. The aim of this individualised approach with robust sickness policy and […]

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09 Sep

Specialist training from a dedicated Clinical Nurse

Total Community Care’s (TCC) training is delivered by a clinical nurse with appropriate experience in the client’s diagnosis and health care needs. All support worker staff complete key competency training specifically related to meeting the client’s needs. This is underpinned by clinical supervision and observation of care delivery. Specialist trainers are also employed by TCC. […]

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09 Sep

Specialist neurological care and support in times of a pandemic

In less than six months the world has changed in so many ways with the arrival of Covid-19. I wonder whether in future we will talk of life pre and post virus times? One thing that is absolutely certain is care and support have had to change to reflect these times. Many clients went into […]

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02 Sep

Managing Complex Care Needs at Home

Complex care can encompass all or any of a range of support services, including physical, social, and emotional support with normal daily activities. These kinds of medical and social needs can arise due to traumatic injury, degenerative illness, or congenital conditions – some people’s care needs can also fluctuate with time and aren’t always predictable. […]

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30 Jul

Spinal Injury without Radiographic Abnormalities

Sometimes, traditional imaging with x-ray or CT scan does not find a clear physical cause for the spinal cord injury symptoms the patient is experiencing – no injuries to the vertebrae or other obvious physical damage around the spine. This is known as ‘spinal injury without radiographic abnormalities’, or ‘SCIWORA’. Sometimes the terms ‘neuroimaging’ or […]

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24 Jun

Living with a Spinal Cord Injury: Common Questions

The effects of a spinal cord injury (SCI) can last a lifetime and vary hugely from one person to another and between injuries. The impact an SCI has on a person’s life and health depends on the extent of the damage and the area of the spine affected. An SCI can have a spectrum of […]

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03 Jun

What are the differences between complete and incomplete spinal cord injuries?

No two spinal cord injuries are exactly alike. The amount of feeling and function a person retains after a spinal cord injury (SCI) depends on the nature and extent of the injury. The spinal cord is a bundle of nerves extending from the brain down the backbone. Pairs of nerves branch off from the spinal […]

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15 May

Spinal Cord Injury Awareness Day

I was an extremely busy teacher for many years, and had an active social life, including going to the gym, dancing, seeing friends, and completely taking my life for granted. In the blink of an eye my life changed forever in March 2008! My husband and I had been travelling back from Cornwall , after […]

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24 Apr

Levels of Spinal Cord Injury

The physical impact of a spinal cord injury depends largely on the area of the spine where the damage occurs. As the spinal cord progresses from the brain down the backbone, pairs of nerves extend between each vertebra to different areas of the body. This means that the nerve signals at and below the area […]

Categories: Spinal Injuries

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26 Mar

What is Anterior Cord Syndrome?

Anterior cord syndrome is a condition affecting the spinal cord. ‘Anterior’ refers to the part of the cord affected; in this case, the aspect of the cord facing the front of the body. It is an ischaemic condition, meaning it is caused by lack of blood flow ‘feeding’ oxygen and nutrients to the spinal cord, […]

Categories: Spinal Injuries

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10 Mar

What are the Specialist Measures for Providing Home Care for our Ventilator Clients?

Going home from hospital with new care needs can be daunting for everyone involved. The intervention that we hear the most questions about is one of the most complex: home ventilation. This is a naturally emotive issue as breathing difficulties can be some of the most frightening, both to the person having the problem and […]

Categories: Ventilator Care

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28 Feb

Corona Virus – COVID-19

There is quite rightly a national and indeed global concern relating to the potential impact of Corona Virus.  The situation is fast changing but I thought it might be useful to make the governmental advice as of 27th February. Inevitably there has been a great deal of misinformation. The most frequent question I have received […]

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17 Feb

Long Term Care for Clients with Brain Injury

The key to getting home and staying home after a brain injury is effective rehabilitation, good planning, and a bespoke team of carers and professionals to meet your ongoing care needs. The brain is incredibly complex, and the results of any injury to the brain can range from mild changes to catastrophic, life-changing events. Brain […]

Categories: Neurological Injuries

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02 Jan

Sarah’s New Year Blog

Happy New Year everybody! So I am getting married this May (sounds scary saying that)! So I thought I would write a bit about my experience with relationships and how I felt about relationships, being paralysed since I was 18 months old, my struggles, and how I feel now. Growing up paralysed from the neck […]

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31 Dec

Funding for Spinal Injury and Neurological Care and Support

What are the different types of funding available for spinal injury and neurological care, and what’s the best way to get funding? Spinal injury, neurological rehab and ongoing care and support are extremely specialist, complex and multi-faceted. No two people are the same, and everyone has their own priorities and their own ways of living […]

Categories: Neurological Injuries

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09 Dec

What is a C6 spinal cord injury?

Spinal cord injuries describe a wide variety of damage to the spinal column and cord. They have profoundly different effects depending on where in the spine the damage has occurred, and whether the nerve impulses are completely or only partially damaged at the point of the injury. As there is such variety in problems caused […]

Categories: Spinal Injuries

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22 Nov

MASCIP 2019

On the 28th November, I and fellow colleagues will be attending MASCIP 2019 in Loughborough. MASCIP stands for Multidisciplinary Association for Spinal Cord Injury Professionals, this will be my first year attending and I am very much looking forward to it. The Associations prime objective is to provide a national professional forum to promote standards […]

Categories: Spinal Injuries

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18 Nov

Moving and Handling Update

Maureen Harriott, Clinical Nurse Specialist, and I attended a moving and handling update last week. The day gave us opportunities to meet other attendees from differing work areas, gain an update/review of legislation, and share experiences of challenges for our clients, patients or service users. In addition, relooking at cost saving in relation to equipment […]

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10 Nov

Back up Ball 2019

On Saturday 9th November Reg Perrins, Commercial Director, Natasha Hole, Care Manager and I attended the Back Up Trust Ball fundraising event. The Ball is an opportunity for everyone to recognise the great work achieved to support people affected by spinal cord injury this year. We shared our table with representatives from both William Martin […]

Categories: Charity Work

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01 Nov

Happy Birthday TCC!

Today marks our 13th Birthday! 🎉🎂 We would like to say a big thank you to all who have contributed to TCC over the past 13 years, and we hope you will continue to be part of the TCC story. Happy Birthday Everyone! Chris, Reg and Debbie – TCC Directors

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15 Oct

Hello from Sarah!

Hi Everyone My name is Sarah Yeo and I am 34 years old, currently living in Bodmin, Cornwall with my fiance Rich, our two dogs Marley and Darcey and cat Sunflower. When I was 18 months old I had an accident which left me paralysed from the neck down and reliant on a ventilator 24 […]

Categories: Community

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25 Jul

Tracheostomy Course

Two day Tracheostomy Course at Northwick Park Hospital attended by Eileen Lynn and Claudine Needham, Trainers at TCC. We travelled to Northwick Park Hospital to take part in the MDT Tracheostomy study days, the first day covering the fundamentals of Tracheostomy care, and the second day Advanced Skills for Tracheostomy care. The course directors were […]

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24 Jul

A day at the seaside with Colin!

During a recent visit to see Colin I accompanied him, his wife (Margy) and team members Chrissy and Katie to Redcar. It was a beautiful day and a walk along the sea front was just what the doctor ordered. Colin chatted to passers-by and loved seeing the dogs on the beach, so much so that […]

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24 Jul

Outstanding Care Forum -10th July 2019 – Callywith College

On Wednesday 10th July myself and Julie Tailor (Operations Manager for the South) attended the Outstanding Care Forum event at Callywith College. Despite a few navigational issues on the way, we arrived in plenty of time to enjoy a coffee and biscuit in the café area, before being asked to go through to the lecture […]

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18 Jul

Jenny’s Journey

Thank you very much to Jenny, a TCC client, who came to our Planning Meeting on 17th July 2019 to tell us her journey. Jenny told her story right from 9 years ago when she had a life changing and devastating Road Traffic Accident which resulted in an ABI (Acquired Brain Injury), through to the […]

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01 Jul

Reflection on Tracheostomy Care Course

The two day Tracheostomy Care course was excellent! Maureen, Theresa, Paula and I have definitely learnt something new.   Leading on from Maureen’s introduction on what the course was about; it was very interesting and we had the opportunity to take part in scenario workshops and simulation and of course the wonderful lectures.   It was very […]

Categories: Neurological Injuries

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21 Jun

Chronic Disease Study Day Reflections

The RCNi Chronic Disease Study Day that I attended on 19th June in Birmingham was very interesting. Here are some of the things that I have taken away with me from the day; Diabetes It is very scary to think that over 4.7 million people have diabetes and that there are over 1 million people […]

Categories: Neurological Injuries

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20 Jun

Managing the Neurogenic Bowel: Skills and Competency Training

Last week I attended a one day training course, run by the Spinal Injuries Association, SCI Nurse Specialists Carol Adcock and Debbie Green, and hosted by Wolferstans Solicitors in Plymouth. The day was entitled Managing the neurogenic bowel: skills and competency training, for Registered Nurses. There were seven other delegates present, all from different nursing […]

Categories: Spinal Injuries

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14 Jun

Reflection on The Spinal Cord Injury – A National and Local Picture Learning and Education Day

On Wednesday 12th June Team Cornwall; Alex and Gemma (Care Managers) with Carole and myself (Clinical Nurses) had the opportunity to attend the above conference. The event was facilitated at The Headland Hotel in Newquay so we knew we were going to have a good day! Sir Ludwig Guttmann (1899-1980) proclaimed “Spinal Cord Injury was […]

Categories: Spinal Injuries

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07 Jun

Spinal Cord Injury Care – A National and Local Picture, Learning and Education Day

Spinal Cord Injury Care – A National and Local Picture, Learning and Education Day. Myself and Colleagues are attending a conference, on Wednesday 12th June at the Headland Hotel, Newquay. The day has been organised in order to share best practice in supporting and caring for patients with a Spinal Cord Injury (SCI) in both […]

Categories: Spinal Injuries

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07 Jun

Wolf Run – We did it!

Well we did it! 🏆🏅 Our team of 6 joined a larger group of runners raising monies for the big difference charity. A brief 10 minute warm up with a Mr Motivator and we were off. 10 km of ropes, slides, tunnels, climbs and of course oceans of mud.  Who knew that with perfect weather that […]

Categories: Charity Work

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22 May

Wolf Run – Raising Money for the Big Difference

Hi, So…. Yes… my colleague (was friend!) Natasha Hole has talked me and 3 others from TCC into the “Wolf Run”, as you will have seen from Reg’s previous posts. I hadn’t known anything about this “Wolf Run” until around a month ago (after I’d signed up for it!) when I was shown pictures and […]

Categories: Charity Work

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